Mother of daughter with rare disability writes book celebrating difference

A mother whose daughter was born with a rare genetic condition has written and illustrated a children’s book to help celebrate difference.

Sarah Gannon, an occupational therapist living in Co Kilkenny, drew inspiration for her book, Just See Me: seeing beyond difference, from her seven-year-old daughter, Ciara, who has Charge syndrome and is deafblind.

Mrs Gannon, 39, who has more than 17 years’ experience working with children with disabilities, said she wanted to write the book to educate people and encourage them to see beyond differences.

“Charge syndrome has lots of different areas of difference, my daughter has got a visual and a hearing impairment, so she’s deafblind and she’s other bits going on with that, like a cleft lip and palate,” Mrs Gannon told the PA news agency.

“She also has cardiac issues and is fed via peg tube. She’s got autism, and she’s got an intellectual…

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